EDS Connective  Avaliações 

incredible, super thorough, and not dismissive whatsoever! i was only on the waitlist for a few weeks and i had prepared myself for it to take months. once i submit my intake, it took less than a week to get my results! they also replied to emails within 24 hours! a lot of people have said that they’re frustrated that you don’t speak with a doctor, but EDS Connective sort of discloses that on their website. they are not a provider, and their focus is strictly your diagnosis. they also say on the website that they do not replace your care team, so again, they are simply there to provide you a diagnosis!

EDS Connective is making diagnostic services more accessible. Especially with specialists being so difficult to find in my area. Their testing is thorough. Their doctors are responsive and quick. In my case I was also directed to have genetic testing which will answer even more questions for me. I feel validated. Thank you for all you do to support people searching for a diagnostic answer.

I finally felt heard and seen by all parties involved with the collective. I feel as though the people who started the collective have allowed me to help my children through their hEDs journey making it easier for them than I had it.

The assessment is thorough and the physician was insightful. I got answers very quickly and a report I can share with my pcp

Extremely helpful offering that expedited getting a proper diagnosis and the additional testing I need.

The EDS Connective is doing amazing work. The diagnostic process was well though out, handled with care, and left nothing lacking. They made sure my questions were answered, showed me in detail why I was given the diagnosis, and made sure I understood my next steps. The connective, in just a few business days, put me with medical professionals who specialize in hypermobility disorders. Whereas I have been trying for years now through the standard healthcare system. The EDS Connective is changing the game. No more gaslighting and insurance nightmares. Straight forward care that is truly focused on helping the patient, not pocketing their money. The funds are going to further research to continue improving quality of life. I'm extremely grateful for their service, and I truly hope they continue to be successful.

I appreciated the thought out questions, and the ability to submit the pics right there in the same screen. I also appreciate the quick turn around. I really appreciated not being gaslit by doctors or feeling like a hypochondriac. They took my symptoms seriously.

Glad to have this evaluation opportunity!

It was quick and easy, and relatively inexpensive. And when there was a communication problem with their system, they owned up to it and made things right.

EDS Connective offered a clear and simple pathway to an EDS diagnosis. The service is reasonably priced and I love that I didn't have to wait for months to see a doctor!

Not worth the money. I paid for what I believed would be an actual telehealth visit with the treating provider, nope. And even though they explained that they do not offer this service, I could have developed the same treatment plan and recommendations to send to my PCP as that which I received from them. Not very personalized, not what I needed. I would have paid, maybe, $199 for this but not much more.

Of note: on many social media sites, other people who also used this company/services expressed the same feelings, with a few individuals stating that they feel that they were defrauded. If this company wants to improve their image and public standing, maybe they could use the feedback to improve their servics.

I feel so grateful for EDS Connective. I only had to wait 3 days, whereas most people can wait years or even decades for answers. It was amazing to be able to do the assessment at home and on my own time, so I didn't have to take time off work or drive back and forth to a bunch of complicated appointments. Likewise, the price couldn't be beat, even as a self-pay patient. If you are on the fence about being tested for EDS or related issues, I couldn't recommend them enough.

Straight forward and easy to do. Answers were quick with a plan to move forward.

Great option for diagnosis with trustworthy doctors. The entire process from intake and assessments to diagnosis results is less than a week compared with years of trying to find a doctor who can diagnose with insurance. Their price is also more than fair. If you're wondering if this is work you're time money and effort-it is-go for it!

I joined EDS Connective’s waitlist because its mission resonated with me. I hoped an accessible hEDS/HSD evaluation would provide meaningful clinical documentation to share with my healthcare providers. Unfortunately, the final results fell short of my expectations.

The service was advertised at $399; I paid $299 with an early-access discount. The online platform was convenient, saved progress, and had an extensive questionnaire. I spent nearly two weeks completing it, providing detailed explanations, photographs, family history, and medical records. The depth of the intake made me expect an equally thorough, individualized evaluation.

Instead, I received a short physician video, a Clinical Summary, a Provider Letter, and a Clinical Order. My concern isn’t the use of templates or an asynchronous format. It’s the lack of individualized clinical interpretation in the materials delivered.

Physician video: The approximately 1-minute-50-second recording did not use my name, state my actual diagnosis, discuss any specific findings, or explain the physician’s reasoning. It mainly described the process and directed me to the PDFs. I transcribed it to check whether my impression was unfair. The transcript reinforced my concern: nearly everything said could have been delivered to any patient. Even genetic-testing referrals were discussed hypothetically rather than in relation to my actual results.

Clinical Summary: Although it included my diagnosis and intake answers, much of the report repeated my own information or offered general education. It did not clearly provide a calculated Beighton score or Feature A total, explain how uncertain findings were assessed, or show how my supporting records informed the conclusions. A brief statement agreeing with my self-assessment isn’t a meaningful explanation of independent clinical reasoning. Standardized templates are fine, but patients should be able to understand why their diagnostic conclusion was reached.

Provider Letter: Despite requesting my primary care provider’s information, it began “Dear Healthcare Provider” and largely offered general information. Worse, its hEDS diagnostic criteria checklist was completely blank: no marked findings or calculated scores. Some answers appeared elsewhere, but a blank checklist offers little value to a clinician.

Clinical Order: It displayed “No questions to be displayed” under Medical Intake, “N/A” for Patient Instructions, and an oddly placed “To Whom It May Concern” diagnostic statement. Together, these details made the documents seem unfinished rather than tailored for clinical use.

The turnaround was faster than the stated review window, but speed alone doesn’t prove inadequate review. Nor am I disputing my diagnosis or objecting to telehealth. I wanted what I understood was being offered: transparent diagnostic reasoning, clear scoring and limitations, and complete documentation useful to my other providers.

I reviewed the materials carefully before contacting EDS Connective with a detailed complaint. I asked for a refund, an explanation of how my evidence was assessed, and confirmation that my concerns would receive a quality review. The founder and CEO personally replied and promptly issued a full refund. I appreciate that. However, the response did not address the substantive concerns or indicate whether any quality review was planned.

I’ve encountered another person who described similar dissatisfaction. That doesn’t establish a widespread issue, but it makes me worry about others who spend hundreds of dollars and may lack the energy or resources to dispute what they receive. This service targets people who may already be exhausted by difficult healthcare experiences; that calls for particular care and transparency.

I hope EDS Connective takes its early-access feedback seriously: explain and document patient-specific diagnostic findings, complete the criteria forms, improve physician communication, and show prospective patients representative samples of the actual deliverables. If these problems recur, temporarily limiting paid evaluations while improving the process is worth considering.

The accessible intake platform and prompt refund were positives. But based on my experience, I cannot recommend this service at its current price. The refund resolved my financial loss, not my concern for future patients.

The ease of submitting all of my information and the promptness of the review and report was amazing.

This was a fast and easy way to finally get an answer to what's been going on my whole life! The intake process is thorough. The doctors evaluate quickly and answer questions promptly. They explain everything perfectly as well! If genetic testing is required, they handle the referral too. I joined the waitlist, and two weeks later I had my answer!

The evaluation process was fairly easy & the response was quicker than expected

I was so relieved to go through this experience. Being believed for the first time and not just told it’s because I’m “out of shape” was a blessing. The process was simple and straightforward and I even got my results on a weekend, which was unbelievable! It was so quick and I’m glad I did it. It was worth the money to finally have answers.

EDS connective made it so much easier to get evaluated. Other places making you wait years to get an appointment and I think I was only on the waitlist for a few weeks.